Thanks for your continuing prayers, especially for Seth. His carbon dioxide has been in the 60s since Saturday night, I think, and he's needing anywhere from 48-65% oxygen. His machine settings were weaned a little bit, which probably explains the changes.
This is a constant balancing act for the doctors and roller-coaster for us! I don't even know how often to post, things change so quickly. I get excited and post, only to have the numbers look worse again in a few hours. Rest assured I will post (or Gavin will) the instant anything urgent happens, but basically Seth's needs are ongoing and serious. Even his "good" days, for which we are grateful, are days of needing lots of specialized machine support and opiates to help him stay comfortable. I am SO grateful for pain medication for my little guy!
|My dad's hand and mine|
|He was smiling in his sleep and looks like he's laughing in this photo!|