But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Monday, September 17, 2012

Update, Monday Sept 17th

Hi all,

Thanks for your continuing prayers, especially for Seth. His carbon dioxide has been in the 60s since Saturday night, I think, and he's needing anywhere from 48-65% oxygen. His machine settings were weaned a little bit, which probably explains the changes.

This is a constant balancing act for the doctors and roller-coaster for us! I don't even know how often to post, things change so quickly. I get excited and post, only to have the numbers look worse again in a few hours. Rest assured I will post (or Gavin will) the instant anything urgent happens, but basically Seth's needs are ongoing and serious. Even his "good" days, for which we are grateful, are days of needing lots of specialized machine support and opiates to help him stay comfortable. I am SO grateful for pain medication for my little guy!

Some pictures:

My dad's hand and mine

He was smiling in his sleep and looks like he's laughing in this photo!

Happy news:

David is in an open crib and back on cannula, no oxygen, and doing great! 
Marcie is doing really well on lowered CPAP settings, no oxygen needed, and is gaining weight slowly but steadily.
Will is getting some oxygen but is also only on cannula still and in an open crib. Fun!
Grace is on CPAP still rather than the vent, although she is having some "normal" preemie apnea and bradycardia we pray goes away.

Gracie needs to gain weight, so please pray for that. She's actually lost 3 ounces over the past few days. The move between hospitals was stressful for her.

Isaac is doing really well. I am fighting a sore throat so will be wearing the face mask when I visit the NICU. Gavin is working part-time at the Center here in Dallas and is at the NICU part-time, of course, not to mention parenting Isaac before and after school. I am at the NICU every day for a few hours, which I love. 

Thank you all for your prayers and every way in which you are standing with us and encouraging us!

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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