Hooray, Grace passed 3 lbs! She's 3 lb 1 oz. THANK YOU FOR PRAYING!
Double hooray: David is up over 4 lbs (just barely)!
Triple Hooray: Will is just 0.3 oz shy of 5 lbs!
Quadruple Hooray: Marcie is only an ounce behind David at 3 lb 15 ounces, but she actually looks "fatter" as she is shorter than he is. :) Both of them need to keep gaining, of course.
And a hooray around here tonight is that Seth is needing less oxygen than he did this afternoon, which of course you all didn't know about. He was up to 88% for no discernible reason, but thank God when I called he was back down to 58%. However, that's only 2% below the "high oxygen requirement" of 60% or greater, and the doctor and nurse practitioner both said that his case is perplexing; why is he not getting any better? They had to go back up on his machine settings (mean airway pressure, for one), although they did wean one other setting by one point. His current settings are "significant," though. For that reason they are repeating the heart sonogram, doing a bunch of lab work, sending out some blood for genetic testing to rule out a mutation affecting his body's production of surfactant (critical lung fluid for oxygen and carbon dioxide gas exchange), and scheduling a consultation with a pediatric pulmonologist. We sure hope and pray the genetic mutation isn't the issue as it is fatal (protein B).
We want to hold and cuddle our baby! It's SO hard to see him in that isolette, addicted to the drugs he has to be on so that he can tolerate the oscillator that's keeping him alive. He's almost always unresponsive when we are there due to the drugs. We're glad he's not in pain or distress, though. Thank God for that.
He's got water on his lungs and pitting edema (swelling). WE DON'T KNOW WHAT'S WRONG (arg!!), but I cling to the truth that our Father knows exactly what's happening and is in complete, loving control, no matter how I might be tempted to feel. It doesn't matter a whit whether I know what's wrong or not. Seth is God's boy; we wouldn't have his darling blond body if not for the Lord. I deeply, passionately hope and pray his little blond head is bobbing around with his brothers' and sisters' one day soon. Thank you for joining us in the battle.
In His Hands, together with all the babies, Gavin and Isaac,
Carrie
This is the blog for Gavin and Carrie Jones and family. We live in Papua New Guinea and are working to see lives transformed by the living Word of God through Bible translation. Gavin is a helicopter pilot. Carrie, who has her degree in Public Health, works in the lab at our busy rural clinic. Our son, Isaac, was born in 2004 and our quintuplets, Will, David, Marcie, Seth, and Grace, were born in 2012.
Let love and faithfulness never leave you; bind them around your neck, write them on the tablet of your heart. The you will win favor and a good name in the sight of God and man. Trust in the Lord with all you heart and lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight. -Proverbs 3:3-6
Sunday, September 23, 2012
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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones
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2012
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September
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- Baby update
- God's provisions
- Seth tonight
- quickly . . .
- Not much new; Friday the 28th
- Another Marcie pic
- Did you catch my screw-up?
- Thursday, September 27
- Quick update on Seth
- Nitric oxide for Seth; updates; pictures
- pictures from yesterday
- Sunday night Sept 23rd
- Big brother!
- Marcie Jane on cannula "laughing" and looking at D...
- Carrie is sick
- prayer answers Sept 18th
- quick requests, praises, pictures
- Update, Monday Sept 17th
- Marcie's tiny hand
- More pictures of Will
- Looking for captions
- Seth this evening
- Seth's CO2
- quick update
- Seth, again
- Video about roles in Bible translation
- A few steps backwards, but still ok
- Nasal cannulas!! :)
- Will: Necrotizing enterocolitis?
- Grace's lungs
- Seth's blood gas
- Will, David and Marcie 9/9/12
- Seth: pics and update
- Please pray! Ventilator switch for Seth
- PICC line is in!
- Another PICC try for David
- Sorry so late . . . (and a P.S.)
- Eye exams; David
- Very successful surgery!
- In surgery now
- Still waiting on surgery
- Gracie's surgery postponed until 12:10; eye exams;...
- Another central catheter for David :(
- Tomorrow's surgery and today's update
- Gracie's surgery; pictures
- Vehicle questions
- Today's praise
- Mini update - Seth & David
- Urgent need for Seth, too
- Pray for David
- What is a PDA anyway?
- Seth update and baby weights.
- "Best day of school all year!"
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September
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I pray that Seth's head will indeed be bobbing around with those of his four siblings HERE IN THIS HOUSE before too terribly long. Love, The Quintessential Grandma
ReplyDeletePraying from Florida that the arms of our Lord are around Baby Seth, can't wait to see him running around with "the pack" :)
ReplyDeleteLord, a special prayer for a very special little boy this morning. Please bring YOUR Healing to Seth - help his little lungs to produce the surfactant that is needed for his lungs to work properly. Lord, You designed that little body and how it works and we know that You can heal it, whether through the doctors, or with a miracle, and we pray that Your will is to quickly heal Seth so that he may grow to be a man of God with a story of healing to share with the world. We praise You for Your goodness and mercy, and Thank You for hearing and answering our prayers for Seth. Amen. NKL
ReplyDeleteStill praying for all . . . especially little Seth.
ReplyDeleteSuch wonderful praises today, so good to hear they are improving even if it's just a bit here and there....extra prayers for Seth, I prayed for them all in church yesterday and those prayers will continue.
ReplyDeleteI'm praying for little Seth and all of you. Prayers going up in N.C.
ReplyDelete