But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Tuesday, September 11, 2012

A few steps backwards, but still ok

After the excitement of getting Seth off the oscillator and Will and David off the CPAP machines, today wasn't as positive.

Seth was struggling to handle the lower pressure settings of the ventilator and so this afternoon they had to put him back on the oscillator.

David, too, was having too many bradycardia events (he would forget to breath and his heart rate would drop dramatically), so he was put back on the CPAP machine.

Will, though, is still doing great on just the nasal cannula, so that's encouraging.  Though they suspected he had NEC with the bloody stools yesterday, everything else indicates he's just fine, so they are thinking it might just be a food intolerance of some kind.  Either way, to be safe, they have him on antibiotics and have stopped his feeds.

Marcie is doing great and they have moved her from the SIPAP machine, which gives reminder breaths down to the CPAP machine.

Grace continues to do well and gradually improve.  She has gained a small amount of weight-- we'll take anything we can get in that area.  She's still not up to Will's birth weight!

The doctor spoke with us for a while and was very encouraging.  In regards to Seth and David, he reassured us that their step backwards is not unexpected. They just weren't ready yet to make the leap to less breathing assistance.  While Seth's lungs are very immature and inflamed, the lungs continue to grow until 12 years old, so Lord willing none of this will be permanent. We know that other issues could pop up, but as they are now, things are ok. We are so very grateful for Seth's good eye exam yesterday and for the good brain scans of a few weeks ago on all the kids. We are also grateful for Seth's "excellent" physical exam today. Aside from his lungs, he's really healthy!

We are praying for each of them and asking God to heal them and grow them in every way and we know He will glorify himself in His most perfect plan.  Thank you for your part in all of this!

Gavin

Will looking around alertly

Will's hand in Gavin's

2 comments:

  1. As each night approaches I pray for these babies, for their healing, for their little bodies to grow stronger each day. I pray for their brother Isaac, that he continues to be happy and do well in his new school....but most of all I pray for you, their parents. So much on your plate at the moment and even on those days when things may not go well you always praise, always maintain a positive attitude. I can read that "quiet strength" in your writings and can imagine your smiles as you look at these precious miracles. May God continue to hold each of you in His loving arms each day....blessings and peace to you all...

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  2. Praying for your little ones.

    ReplyDelete

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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