But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Tuesday, September 25, 2012

Quick update on Seth

The head of neonatology for UT Southwestern came to consult with Seth's doctor and says that it is NOT the rare mutation that is affecting Seth. He would know, because he has worked at a center for babies with that surfactant deficiency! Praise God for his knowledge in this area! He says Seth has bronchopulmonary displasia (which we knew from the other doctor), not unexpected given he was a quintuplet born before 28 weeks. What IS unexpected, and what the whole staff is cheering about, in the head neonatologist's words, is that the other 4 are doing so fabulous!

He said Seth is responding excellently to the nitric oxide and will stay on it. He's had babies on it for weeks to months with absolutely no negative side effects. This is doing a world of good for Seth's lungs, decreasing the pressure his little heart and the machine are having to fight against. Thank God there is no heart change or damage yet, and we want to keep it that way!

One thing is that Seth will need some heavy-duty diuretics over the next two days to pull the water off the lungs that is accumulating as the nitric does its job. They will be attempting to correct his potassium and sodium levels, too. Thanks for praying!

16 comments:

  1. Wonderful news! May we continue to bring your family before the throne that He may continue His good work through you that we can all give God - the author and creator of life - the glory in all things!

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  2. Praise God from whom all blessings flow-horray, horray for baby Seth-hang in there little guy!

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  3. Amen! Thank You, Lord, for the good news for Seth and that the nitric oxide is working. Praising You for the knowledge of the doctors, and asking that You continue to guide and direct their actions with all of the little ones. Protect these precious ones and give Carrie and Gavin the strength and support they need for these anxious times. Also praising You, Lord, that Isaac continues to do well. Thank You, for continued blessings for the Jones family. Amen. NKL

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  4. Praise God from whom ALL blessings flow!

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  5. Is Dr. Savani the head of neonatology at UT Southwestern? He is a very respected man in his field.

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  6. Such awesome positive news. We prayed for them at Coffee Club this morning. I give a weekly report for the group. Great to see real baby clothes. (smiley face) Judith

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  7. That's great to hear! Praying for you all!

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  8. Incredible! So thrilled to hear answers to prayers!!!

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  9. Hi Carrie~ I have been praying for you and your beautiful family since I heard about the birth of your babies. I, too, have quintuplets (4 surviving), and know very well what you're going through...even down to having a Seth who needed extra prayer!! (he had recurrent NEC, but is now doing great!!) Life in the NICU can be so challenging, yet so very meaningful. God Bless you and the amazing life God has so graciously granted you. When my babies were small I used to say "with my Lord and my husband, I can do anything!!" It is still true today :)

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  10. Wonderful news!!! Thank you Lord!! I hope and pray Seth continues to do well and improves quickly. So happy the other babies are doing so well. Love to see them in baby clothes. I remember how fun that was when we finally were able to do that.

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  11. So, so happy and thankful to God to hear this wonderful news! I have been praying and praying for God to heal Seth and that he would be found to have NO genetic mutation. Praise God! Also so thankful to hear how great the other 4 babies are doing. Love, Amy Long

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  12. So glad to hear this news! Carrie, have you thought about recording your voice to play when you're not around (e.g. during stressful times). The human voice is so important to hear (especially Mommy's!!).

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  13. Thank You Lord!! I have been praying for all the family but I have a son named Seth so I fell head of hills for our blonde baby boy. Thank you for sharing your story because it has brought so many of us closer to God and saying little prayers all day long - or at least I do and I know many more do as well. Will continue to lift your beautiful family up and again we serve a Wonderful God!!

    Julie

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  14. We are continuing to pray for you. Your babies are beautiful and a gift from God.

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  15. Praise God for His unfailing love and wonderful ways of answering prayers! I will continue to pray for all of your family as you follow and glorify Him.

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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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