But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Tuesday, August 28, 2012

Little gray Gracie; update on Seth


Gracie has been experiencing precipitous drops in her heart rate and oxygen level; twice while I was there today her oxygen dropped from the 90%'s down into the 50%'s . One time I was "nestling" her (one hand on head, one on chest, the only kind of holding I can do yet with her and Seth) while praying, talking and singing to her. She suddenly just alarmed and went gray.

She also lost weight yesterday rather than gaining, which was a warning sign.

It turns out her patent ductus arteriosis (PDA) is very large again. She is being started on medication at 10:00 tonight. We will know by Thursday morning if the medication was enough to close the PDA again or if she will need surgery. The medication is not usually as effective this far out from birth date, but they hope to avoid surgery because of the risk of infection.

Meanwhile, she is receiving a blood transfusion to counteract her anemia (low hematocrit).

We pray God's will be done and ask Him to protect our little girl, recognizing she is truly His little girl.

Grace after one of her spells

Seth's blood carbon dioxide rose dramatically at just one setting lower on his ventilator, so they had to turn it back up again. They have been unable to wean him at all from support, although thank God he needs less oxygen than he needed prior to receiving the steroids (40%'s and low 50%'s vs. 60%). He has chronic lung damage and just isn't healed enough yet to cope with any lowered amount of support from the oscillator ventilator. Please continue to pray for his healing, peace, and protection in every way.

Marcie and David need to gain weight. David hasn't netted any real gain in the past week, but wow, is he alert! (Picture below)

Will is was on a lowered CPAP setting today, an encouraging sign, but is still needing oxygen whereas Marcie and David are on room air only through their CPAP. Will is growing well, thank God.

I got to hold Marcie today, comfort Will with some hands-on time, change David's diaper, and "nestle" Seth just as I did Grace, also while singing, praying, etc. Each child is SO incredibly precious and beautiful. Thank you for praying for each. We know God loves them more than we can imagine.


Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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