But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Monday, August 27, 2012

Brief, sobering news

Seth has "significant lung disease," and if things don't turn around dramatically and soon, there is a "very real possibility" he'll come home with a tracheostomy (hole in his trachea) hooked up with a ventilator or CPAP machine, as well as a hole into his stomach to allow us to feed him. The tracheostomy will prohibit him from being able to vocalize or cry audibly, and in the doctor's experience, he could have it for possibly even a year.

The doctor said all 5 babies, not just Seth, are still at risk of dying. In her words, "None of them is out of the woods yet."

Case in point: Grace had to have her ventilator support increased rather than starting weaning from the ventilator today.

Marcie, David and Will continue to have spells of apnea, when they stop breathing  and experience drops in their heart rates.

Please continue to pray for these babies. I didn't realize until today how precarious their situation still is. The doctor really laid it out there for us. Naive optimism is gone; we realize the Lord is these babies' only hope for life on earth and for all eternity. He is greater than any challenge and sovereign over each atom of their being. Thank you for joining with us as their prayer warriors.

In His Hands, along with Seth, Grace, Will, David, Marcie, Isaac and Gavin,

P.S. Please also pray for Isaac, who didn't have a great 1st day of school today. He is exhibiting serious insecurity and fear at night, especially. We are praying with him, reading from Scripture, staying with him while he falls asleep, and protecting him from news that might be too upsetting.

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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