Please also keep praying for Gina and family, for peace for them all and protection over them as a family as they grieve their little boy's death together.
David and Grace had their first ECI appointment at home. David promptly did three times in a row the test he "failed" in the office, and was scoring actual age (7 months) vs. adjusted age (4 months) on several areas, and in one area was doing stuff they only start to worry about if they don't see it by 11 months! So he was a bit perplexing for them as they tried to decide what to work on when they come out, since he wouldn't have qualified in the first place if he had simply performed in the office like he did at home! :) Grace does seem to lag behind the others, but it's so much fun to see her do a week or two later what David (usually) started, Will followed, then Marcie and Seth came behind. :) The newest thing is manipulating objects with their feet and grabbing their own toes. They are getting SO interactive, too! They love to laugh at and play with each other's limbs. :)
It is BUSY around here. They are getting more difficult in some ways as they sleep less and what more stimulation. Whew! I am GLAD Spring Break is over; I missed the volunteers and am super behind on some stuff! Today is a great catch-up day, including sleep. :)
Regarding the toys I asked for (used, garage sale, from people in this area), it's not that we can't go out and buy new ones as some sweet people have offered to do for us; it's just that I figure why not get more use out of washable used ones people don't need or want anymore? The kids outgrow them so soon, it's a shame to pay full price unless you have to, right?! ;) Maybe that's the missionary in me talking . . .
I can't post pictures as normal because our silly photo program isn't working, but I have some cute ones! The ones below I managed to get onto FB and then screen shot into this post. Getting creative in my attempt to show off the babies . . . ;)
Love,
Carrie
Tummy time is much easier with Baby Einstein! But it still doesn't last really long. The therapist recommended this. Who knew TV could be a good thing?!
 |
| Since Seth missed out on the tummy time photo due to sleeping, here he is with his bib only half off and looking really cute! :) |
I love their little faces! So cute! Praying for you all.
ReplyDeleteThe answer WILL come for Seth...he just looks as bright as a new penny! They are all beautiful....praying as always for you all...
ReplyDeleteSeth is SO expressive...So cute...and the picture of the other watching the movie,,, Will and David so intense :) and Grace looks surprised by what she sees..and Marcie says I'd rather watch something else:) I Love it... Thanks
ReplyDeleteStill Praying for Seth, and for Gina and her family...and for the new routine( different sleep patterns and Praise God for the Volunteers coming back...
And way to go David for showing off with the Therapist!!!
OH Grace looks perplexed but so interested in what she sees!! Such smart babies!!
ReplyDeleteCarrie it's not just the missionary in you not wanting to buy brand new toys--it's the good steward!! I was in charge of buying a group gift for the chapel for a baby shower for a 1st time mom and I couldn't bring myself to buy something on the registry that is $50 that I got for myself at the thrift store for $2 and know they are frequently found there!! With Randy and I starting over with a baby coming in April (our boys are 10 and 12) I haven't bought anything other than the coming home outfit new--they get big SO quick!!!!
ReplyDeleteAlice
Alice, knock me over with a feather!!! I had no idea you & Randy are awaiting #3!! CONGRATULATIONS!!!! So happy for you all. Love & hugs.
DeleteIt's so funny how we change our idea of what is a need. We started over too. Our oldest was 19, our youngest 7. We literally went shopping the night before for a coming home outfit for our new baby. :-)
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Hi Carrie, yes, I feel the same way about obtaining good toys at the thrift store. But, there is always the special one that they may use for a long time that you cannot find. Janet and Lynn grew up with thrift store finds! But there still may be that "special one". Praying for all of you every day--love, Phyllis
ReplyDeleteI hope everyone realizes Seth's bib is a MICHIGAN STATE bib from Aunt Fay!
ReplyDeleteThat is the best picture of Seth. He needs a hat like that. The others watching the screen are so funny. Looking at it closely, I see that each of them is intent on a different part of the screen. I see that your numbers are going up which is so funny because I probably check your blog 5 times a day. Continuing to pray for wisdom for both you and the doctors as you deal with Seth's eating issues.
ReplyDeleteBlessings,
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Hi, Just came across your blog, my son was born with ABCA3 too and was wondering if you are apart of any of the chILD groups online..Its a great place to be in contact with others who are facing the same challenges of living with a lung disease. And many of our lung kiddos do have feeding problems maybe someone can help give you answers for Seth or ways that will help. If you want feel free to contact me. I would love to help in any way I can and I will keep you and your family in my prayers!!
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So sweet to hang out with the little guys last night. I haven't had a chance to interact with Seth much before now, but he is such a special little person. Love how he is fascinated by faces and cheered up just by having someone near. Even though he had just been through a bout of tummy pain (relieved by Samantha's capable care), it didn't take much to bring a sweet smile to his cute baby face while he was hanging out, waiting to get reclothed in a clean outfit. Such a privilege to help care for him.
ReplyDeleteWill and David kept grabbing onto my fingers, but I think Seth grabbed a piece of my heart :) Get strong, dear little man!
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