But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Sunday, March 10, 2013

Poor baby Seth; new baby antics

Hi everyone,

This week I was convicted by the verse in James 1 "You have not because you ask not," because I feel like I've been approaching this whole feeding intolerance of Seth's as just a problem for doctors and time to fix. Granted, I've asked for prayer, but I feel like my own prayers haven't been as straightforward and faithful as they should have been.

Lord, if you are willing, please heal Seth's tummy for your own glory! And also for his good, that he won't vomit several times a day [a very upsetting, gut-wrenching (literally) experience sometimes]. Please heal him so he doesn't wake up out of sound sleep screaming with severe gas pains.

The other day there was so much pressure build-up from gas that before I could even get the venting syringe inserted into his g-tube the gas came hissing out of  the clamped tube like an untied balloon having the air slowly let out. We have to use a 60 ml syringe because there is often a lot of residual undigested elemental formula (i.e., the kind that shouldn't require much digesting as it's already broken down!) that bubbles out with the gas. A couple of times it's almost filled the tube. So we have a baby who isn't growing adequately but we can't increase his feeding volume because he's not even digesting the food that's going in. Which of course then results in vomiting.

I know I am not alone in this; there is information and tips all over the Internet. My latest "what if?" is corn syrup solid intolerance. I can't find anything about gastroesophageal disease (GERD) causing such bad gas; that seems to be a symptom of reactions to ingredients in the formula/breast milk. I am going to call the GI specialist tomorrow to see what she thinks of trying a soy formula.

One interesting thing I found in my search for answers online was a strong association between feeding intolerances/GERD and breathing disorders. They tend to exacerbate each other. There are special sensors on the top part of the esophagus that react to the vomitus and trigger a reactive airway response. (I'm practically a doctor. Ha, ha. Hope I got that right!)

A lot of what I read says it just takes time and patience for babies to outgrow this. If that's how the Lord wants to work in this situation, He's clearly got our best in mind and He is trustworthy. But it's not going to hurt to ask Him to mercifully heal Seth sooner. We're told to boldly approach the Throne of Grace to find receive mercy and find grace in our time of need. (Hebrews 4:16) There are hundreds of "yes" answered prayers from the past year (not to mention my whole life and the whole of history), so I'm approaching the Throne again, grateful that I have Jesus at the right hand of the Father as my Intercessor who ever lives to plead for me. (Hebrews 7:25: Therefore he is able to save completely[a] those who come to God through him, because he always lives to intercede for them.") However, I do realize that "no" and "wait" are also answers, and it doesn't mean He loves me or Seth any less. His love is perfect and infinite, unaltered by my faithfulness or faithlessness in prayer or anything else.

By the way, Marcie rolled over on Friday and has several times since. So that's three out of the five so far! Seth loves to climb/crawl up his Boppy or up my chest, digging his head in the whole way. It's so cute! Gracie likes to sit in her seat and watch everything and or lie on the playmat and hold on to toys above her; when put on her tummy she just lays down and cries. :)  David loves to hold his feet and stick his toes in his mouth. He also loves to grab and hold toys dangling above him using just his feet. Will and David and Seth are starting to feel our faces with their hands a lot. Will got the Johnny-Jump-Up going so wildly he banged his head on the wall. :} Oops.

So that's the scoop from here. Love and gratitude to you all!

David and Marcie

One of my all-time favorite pictures. The speech therapist is working with Seth learning to eat sweet potatoes, and Marmi (Gavin's mom) is having a great time while Seth looks rather stunned by the new experience.
Seth appeared to need to hold on

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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