But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Wednesday, March 13, 2013

Still waiting and praying

Hi everyone,

There's definitely been some struggle with discouragement the past couple of days as Seth continues to empty his stomach several times a day and continues to lose weight rather than gain. The GI doc changed his Prevacid to Nexium, and she is considering another formula change (from Elecare to Neocate; some babies like it better). I asked her about goat's milk, but that's not complete enough nutrition; soy allergy usually goes hand-in-hand with milk protein allergy in her experience, and she has yet to see a baby with corn allergy at this age. This formula is essentially pre-digested, but Seth still has a hard time digesting it! In addition, we're still seeing blood from time to time. I know this is a chronic condition for many preemies and may necessitate surgery to help correct, but it's of course hard to see MY child suffer in the meantime, and the surgery is not without its own complications, including severe stomach bloating and pain. I wouldn't want it if I didn't know we could vent him manually using the syringe and his g-tube. We have a general health check-up tomorrow, during which they will note his weight loss and hear the laundry list of ongoing symptoms, so we'll see what the pediatrician says.

On a much happier note, he's doing really well with his various therapies. Also, Gracie rolled over on Monday! Seth is the last hold-out. It's hard to do tummy-time and practice rolling over when it makes him vomit. :(

Spring Break has made things a bit busier around here, especially as we've have lots of appointments to get to. Seth and Will are also being assessed for head re-shaping bands. Their right ears are markedly displaced and lopsided when seen from above, and they both have a noticeable flattening on the right side of the back of their heads.

Will and Marcie were assessed for Early Childhood Intervention (ECI) yesterday and happily did not qualify. It was so cute to watch them be put through their paces. :) They are adorable as they play with and explore toys and faces and surfaces with hands and mouths. I really hope the plastic mat in the room was disinfected because Will kept licking it. Last week David and Grace qualified for ECI just barely, David because he didn't track a toy from above his head to the floor when it was dropped (Will and Marcie, on the other hand, knew to look on the floor to find the toy.), Grace because she doesn't make consonant sounds like the other kids do.

That's it from here for now. Thanks so much for praying and caring!

Love,
Carrie

Clearly HANDSOME runs in the Peterson family ;) This is my brother, Kenneth, holding Will


Going . . . 

Going . . . 

Gone! (But not without swiveling around first in one final gasp of tired effort.)



Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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