But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Sunday, January 6, 2013

The latest on Seth

We're still in a holding pattern, pending the swallow test which will be done tomorrow (rather than yesterday as planned) to check and be sure he's not aspirating fluid into his lungs when eating; also pending the results of a test for rhinovirus (a.k.a. the common cold) that's been positive the past few times they've tested him. It will be 2-4 weeks AFTER his rhinovirus test comes back negative before they can talk about the surgery for the g-tube, even if it's laparoscopic. My guess is they want to ensure his airways and respiratory system are not compromised by any type of infection before they operate.

Meanwhile, today was not so good for eating from the bottle. He only took a little bit a couple of times, nothing the other times, and had several spit-up/vomit episodes. :( I know God's plans and timing are perfect, and it's a good thing I can be assured of that from Scripture and by His Spirit, because this mommy is really struggling with not being able to have her baby with her! I cannot even kiss him or touch him or smile at him since I am required to wear a mask and gloves and gown whenever visiting, due to both his contagiousness and anything I might be bringing from home. Hopefully my voice still means something to him. He just loves having people around, so that's good!

He has some developmental delays secondary to hospitalization; another reason I am eager to get him home! Thank you for your continued prayers, and please do pray he would thrive and develop as he should even in the hospital under such aggravating restrictive conditions. I'm so grateful for the occupational, speech and physical therapists, as well as the child life department and the wonderful nurses who love him in our absence!

Grateful for you all, too,

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Blog Archive