The docs are now hesitating to make a decision to put the g-tube in Seth since he ate really well (2 oz.) his first feeding today. However, he also spat up the small amount he took by bottle at the next feeding, so Gastroenterology came and assessed him and gave him the official diagnosis of acid reflux. He's already on an antacid but perhaps can benefit from a change in formula, hopefully mixed with breast milk, since the formula change is what turned things around for the 3 babies here at home (all but Grace, who has spit-ups but not anything painful or distressing or stopping her from eating).
Please pray for wisdom as Gastroenterology and Neonatology discuss the options and make the best decision for Seth. They are doing a "swallow test" on him tomorrow to make sure he isn't choking some of his food down the wrong pipe when he's trying to swallow. He's uncoordinated in his suck and swallow and could possibly be aspirating the milk, which of course could lead to aspiration pneumonia.
Whew! On that note, I am heading to bed. So much more to say, so many pictures to attach, so late at night . . . ;)
Love,
Carrie
This is the blog for Gavin and Carrie Jones and family. We live in Papua New Guinea and are working to see lives transformed by the living Word of God through Bible translation. Gavin is a helicopter pilot. Carrie, who has her degree in Public Health, works in the lab at our busy rural clinic. Our son, Isaac, was born in 2004 and our quintuplets, Will, David, Marcie, Seth, and Grace, were born in 2012.
Let love and faithfulness never leave you; bind them around your neck, write them on the tablet of your heart. The you will win favor and a good name in the sight of God and man. Trust in the Lord with all you heart and lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight. -Proverbs 3:3-6
Friday, January 4, 2013
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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones
Blog Archive
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2013
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January
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- Over a million!!??
- News story video
- Update Monday night, January 29th
- The Valley of Blessing!
- "I'm loving them all the time."
- SETH IS HOME!!!!
- Just waiting around :)
- Seth coming home TODAY!
- Finally posting an update!
- Happy Birthday, Isaac!
- Huge answers to prayer!
- Seth's homecoming complications?
- Pictures from the last couple of days
- Update on Seth; Sunday night Jan. 20
- Seth already back on cannula in his room
- Seth is in surgery now: 1 pm
- A few more . . .
- First official stroller ride!
- Surgery moved to tomorrow
- Random photos from the past few days
- Seth's surgery approved!
- 5 of the 6 siblings; story time with Lynn
- Two Wills!
- Marcie's turn to have pictures taken
- David pictures (also handsome!)
- Will pictures (isn't he handsome?)
- the most adorable picture ever
- Just hanging out at home
- Seth pictures and update
- Sometimes Valentine's Day is a flop
- Marcie Jane montage
- Jubilation!!! And pictures
- Interesting news interview . . .
- Quick Seth and Grace note
- Stroller P.S.
- The new latest on Seth :)
- P.S. on the earlier "volunteer" post
- The latest on Seth
- Quint stroller!
- Why I am SO grateful for volunteers!
- maybe not . . .
- quick Seth update
- Decision time re: Seth
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January
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Maybe the new formula will work like a charm and he will not need the g-butoon. Knowing Seth and how God has worked so many amazing miracles with him this would not surpise me at all. I will keep praying. God Bless you all.
ReplyDeleteThings are always changing (diagnosis, formulas, diapers (smile)) but the one constant and never changing factor is God. He is the same yesterday, today and forever, and His grace is sufficient. I'm sure you can tell me much more about that than I can tell you!!
ReplyDeleteLove to all,
Gail Boemker
Putting on the brakes in a decision that you thought was already made happens a lot with Doctor's, especially dealing with kids. They had us all set, ready, trained etc. when they had decided to put a trach in our little baby grandson. We arrived early in the PICU that morning and literally 30 minutes before surgery they called it off. We wanted Zeke HOME and they told us the only way that would happen was with the trach. We were upset, angry, confused etc. But, in the end they were right. They did some other minor changes and he improved....after another month he DID come home....minus the trach! Patience and prayer, prayer and patience....Seth too WILL come home. My prayers for him and you continue....
ReplyDeleteHas anyone suggested a cranio sacral therapist? It could be monumentally changing at this point in the game for Seth. Especially on the bottle sucking. The research on this type of therapy is amazing and really worked wonders in oir lives! God Bless all of you and lay his healing hand on those precious little ones!
ReplyDeleteFather, we ask only that Your Will be done, but we are praying that it be Your Will for Seth to improve and for the doctors to make the right decisions regarding his care. Please bring Seth to full health and allow him to go home without additional surgery and eating and breathing well on his own. Thank You for your continued mercies and blessings. Asking all this in Your Son's precious name and giving You all praise and honor. Amen. NKL
ReplyDeleteLord, thank you for all the miracles you have done for little Seth. We ask that you would continue to strengthen and heal him and that he would soon be ready to go home. Please help Carrie and Gavin as they ride this roller coaster of uncertainty and change. Help them to relax in the knowledge that you are in control. Amen.
ReplyDeleteP.S. As I typed that prayer I realized I was quoting the motto from Jungle Camp in Mexico long ago-- "Calmness in uncertainty and change."
With love and prayers from a colleague in Arizona.
Praying for Seth and all his caregivers as they assess him and try to make the best possible decision! Such a roller coaster...but he's come such a long way!
ReplyDelete