But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Thursday, January 3, 2013

Decision time re: Seth

They are doing an upper gastrointestinal tract panel of tests at 1:45 partly/mostly as baseline assessment for laparoscopic placement of a short tube through the skin into his stomach. The laparoscopic placement will allow him to be sedated rather than put under general anesthesia and re-intubated. They are also ruling out any physical abnormalities that might be the cause of reflux, although he hasn't had much visible struggle with that. The radioactive solution they will put through his naso-gastro tube will show up on the screen so they can make sure the food is going where it should and not backing up. Will update as soon as we know anything! He hasn't been able to improve on his bottle feeding, so they just want him home. As part of that, they are discontinuing some of his meds so they know which ones are still truly necessary for home dosage. The fewer the better and easier for us! The surgically-placed stomach tube will also make life easier on all of us as Seth gradually learns to eat and grows new lung tissue and strength so he can suck AND breathe without wearing out. So we'll see what the prognosis is based on this afternoon's tests.

Thank you for praying and caring!

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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