But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Wednesday, January 23, 2013

Seth's homecoming complications?

Hi everyone,

I am struggling with some discouragement over the disappointing and complicating news that our health insurance for Seth has maxed out, perhaps throwing a bit of a wrench in the work to get him home Thursday or Friday. I am so indescribably grateful I can know God is sovereign and only ever works everything together for the good of those who love Him and are called according to His purpose. (Romans 8:28) Thank you to all who are praying us through this. I can hardly wait to get him home!

Another sobering fact is that before they knew we were maxed out on our insurance for Seth the hospital was attempting to secure 56 hours per week of professional nursing care at home for the foreseeable future. His needs are just too great for us to deal with on our own, especially on the weekends and in the evenings when help is more sparse and babies are more needy. :} He will also need regular home visits from the occupational, physical and speech therapists (due to developmental delays secondary to prolonged hospitalization and to help him overcome his oral aversion and learn to eat by mouth; he's back to almost all tube feedings only following the surgery), as well as durable medical equipment provision and maintenance. Whew! But our Father has provided so richly in the past, and we know He knows our needs before we can even think to name them. (Matthew 6:8)

Tonight when I was visiting he cried almost the whole time, then vomited profusely. It was a hard evening. I kept remembering, though, that we begged for his life and have been given that, so these hard times are really a blessing since he's here with us to go through them together. We cannot praise and thank God enough for sparing our little boy.

In the meantime, to those of you who feel led to pray for patience and protection: Gavin and I could really use it. There are times each evening we definitely fail, and "you always hurt the ones you love," in my case my wonderful stressed-out husband. I also am needing to scale back in some other areas.

Thursday, Lord willing, we will have things figured out with the financial department of the hospital and can room in with Seth to get teaching on all his equipment and special needs. Then, please God, he can come home! As I carried his car seat through the halls of the NICU this evening I was reminded again of the miracle God has done for us.

To Him be the glory forever and ever, in our lives, in Seth's, and in all of creation,

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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