But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Tuesday, October 16, 2012

Slide show of the Quints; news

Quick update on Seth: He seems to be sailing through the critical period of the nitric oxide discontinuation, praise God. He hasn't had any rebound or other negative effects. Thank you for praying! He no longer has pulmonary hypertension but he still has very damaged lungs. They have been able to wean his machine settings a tiny bit but not the amount of oxygen he's receiving. The progress is slower than they had anticipated or hoped, and the doctor said yesterday, "He's still very sick." They are considering using steroids again but are debating the pros and cons. So thank you for continuing to pray both for Seth and for wisdom for the medical staff.

Will is 7 pounds even now! Seth is 5 lb 12.8 oz, David is 5 lb 5.5 oz, as is Marcie, and Gracie is 4 lb 5 oz. Marcie is on only very minimal airflow, as is Will, and Gracie is needing more airflow. Please pray her lungs continue to heal and she continues to grow.

Marcie nursed for the first time today and did super great, just like her brothers! It was really special for me to get to nurse all three in one night. :)

We found out today that Marcie has the same genetic mutation as Seth and that David does not have the mutation; still awaiting results on Will and Gracie. I am encouraged that maybe this means Seth has just plain old bad lungs that he can outgrow, unless he's more affected for some reason by the genetic mutation. Perhaps it's a "variant" rather than a "mutation," according to one specialist; he says 2% of people of European descent have it on one gene like Marcie and Seth!

This is the slideshow that I put together for the shower at our church on Sunday. Thank you to everyone who was able to come and for all the generous gifts!!! We are so honored by your love and concern for the babies. I personally don't like going out on Sunday nights (unless it's a shower for my babies, ha, ha!), so I was really impressed at how many of you all sacrificed and did that for us. :)

Love and gratitude to you all,
Carrie




Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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