Quick update on Seth: He seems to be sailing through the critical period of the nitric oxide discontinuation, praise God. He hasn't had any rebound or other negative effects. Thank you for praying! He no longer has pulmonary hypertension but he still has very damaged lungs. They have been able to wean his machine settings a tiny bit but not the amount of oxygen he's receiving. The progress is slower than they had anticipated or hoped, and the doctor said yesterday, "He's still very sick." They are considering using steroids again but are debating the pros and cons. So thank you for continuing to pray both for Seth and for wisdom for the medical staff.
Will is 7 pounds even now! Seth is 5 lb 12.8 oz, David is 5 lb 5.5 oz, as is Marcie, and Gracie is 4 lb 5 oz. Marcie is on only very minimal airflow, as is Will, and Gracie is needing more airflow. Please pray her lungs continue to heal and she continues to grow.
Marcie nursed for the first time today and did super great, just like her brothers! It was really special for me to get to nurse all three in one night. :)
We found out today that Marcie has the same genetic mutation as Seth and that David does not have the mutation; still awaiting results on Will and Gracie. I am encouraged that maybe this means Seth has just plain old bad lungs that he can outgrow, unless he's more affected for some reason by the genetic mutation. Perhaps it's a "variant" rather than a "mutation," according to one specialist; he says 2% of people of European descent have it on one gene like Marcie and Seth!
This is the slideshow that I put together for the shower at our church on Sunday. Thank you to everyone who was able to come and for all the generous gifts!!! We are so honored by your love and concern for the babies. I personally don't like going out on Sunday nights (unless it's a shower for my babies, ha, ha!), so I was really impressed at how many of you all sacrificed and did that for us. :)
Love and gratitude to you all,
Carrie
This is the blog for Gavin and Carrie Jones and family. We live in Papua New Guinea and are working to see lives transformed by the living Word of God through Bible translation. Gavin is a helicopter pilot. Carrie, who has her degree in Public Health, works in the lab at our busy rural clinic. Our son, Isaac, was born in 2004 and our quintuplets, Will, David, Marcie, Seth, and Grace, were born in 2012.
Let love and faithfulness never leave you; bind them around your neck, write them on the tablet of your heart. The you will win favor and a good name in the sight of God and man. Trust in the Lord with all you heart and lean not on your own understanding. In all your ways acknowledge Him and He will make your paths straight. -Proverbs 3:3-6
Tuesday, October 16, 2012
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Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones
Blog Archive
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2012
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October
(34)
- More on Seth
- Specifically about Seth
- Happy days!
- Pictures of the boys
- Quick update before bed
- Extubated!
- Ultra-quick!
- PRAISE! And PRAY, please!
- And then there were 4!
- Steroids needed
- Whew! What a relief!
- SOS for Seth
- Super quick update and prayer requests, praises
- Slide show of the Quints; news
- Critical period
- Homecoming delayed
- Pictures Thursday Oct 11th
- Seth struggling more today
- Brochopulmonary dysplasia (BPD)
- Oooops Again. And a baby's coming home?!
- back up on vent settings :(
- oops
- joyful days
- Two months old!
- Volunteer and gifts Q&A
- THANK YOU!
- Saturday night Oct 6
- Two more pix of Gracie
- Volunteers needed!
- Update/Pictures Friday Oct 5th
- Seth: surfactant deficiency mutation
- Not much news, but our babies are cute!
- Prayer time for Seth today
- pulmonary hypertension, PDA, infection and eye exams
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October
(34)
That was beautiful!
ReplyDeleteOh my, what a great job you are doing. These children, and their big brother, are truly blessed. You give a huge testimony of faith, so enjoy keeping up with your "crew". On our knees in Florida, "strangers", praying for your family. Hang in there baby Seth, you can do it buddy. Thank you so much for the updates, and beautiful video, I feel like you are part of my family :)
ReplyDeleteLove in Christ,
Your family is just beautiful. You are a testament of God's love. I will continue to pray for all of you. I pray for healing for Seth and for Marcie, continued growth for all of the babies, especially Gracie. I also pray for strength and energy for you, Carrie and Gavin, and for love and comfort for Isaac. I praise God for the blessings he has already bestowed upon us through the babies and you, Carrie, Gavin, Issac, and the extended Jones family. Thank you for sharing. I cried through the video, but many of those tears were tears of thanksgiving. You are in my heart every day.
ReplyDeleteCried all the way through the video this morning...such blessings, each and every single one of your children...Issac is adorable with his brother David...you have a beautiful family. Prayers will continue.
ReplyDeleteBeautiful video! Continued love and prayers...
ReplyDeleteAbsolutely beautiful! The music you chose was perfect too. Thank you for sharing it with us. I pray everyday for your family.
ReplyDeleteThank you for sharing the beautiful video. Continued prayer for all of you, especially for little Seth and continued growth for Gracie. Isaac, you are such a handsome big brother. Love to all. Aunt Fay and Jim
ReplyDeleteThank you for sharing this journey! Takes me back 8 months when our little girl spent her first 4 months in the NICU. :) God is faithful indeed!! I will keep praying until you bring each of your babies home and they are all off the machines!!!
ReplyDeleteBeautiful! Love you guys and continuing to pray every day! sharon b.
ReplyDeleteOh my what a blessing you have showered us with. I too cried through the video and the music was right on. Thank you for taking the time to make the video to share with us and you can tell how much the babies have grown. Prayers will continue for Seth and the others, but I do believe mommy and Seth might have the same color of hair. Prayers for Isaac and him in school and being a big brother. Thank you so much for sharing the journey.
ReplyDeleteThank you for sharing your family's journey with us. Each night I pray for healing for those precious souls God has placed in your care. In all the chaos, please don't forget to take care of YOU, too.
ReplyDeleteLove and blessings ~
Lisa
Thank you for sharing this slideshow, it is absolutely beautiful. All of your babies are lucky to have you as parents. I pray for them, and say an extra one for Seth, everyday. Thank you for sharing your journey, I check the blog everyday.
ReplyDeleteKelly
Mom of a 1 lb 7 oz, 26 weeker
you guys did a great job on the slideshow. i really wanted to come to the shower and give you a hug carrie but i wasnt feeling well so i stayed far away. but im praying with you guys for all your precious babies and isaac.
ReplyDeleteThank you so much for sharing the video. I cried all the way through it too, but they were thankful tears. Will keep praying for all of you, especially Seth.
ReplyDeleteOh my goodness, what a beautiful testimony of faith. It will mean so much to the babies in the years to come. Such a good idea to have the names on there too! I only have 2 girls - 3 yrs apart - and sometimes I am not sure whose pic I am looking at!
ReplyDeletePraying as always for healing and comfort for your precious quints, and strength and support for the whole family.
Thank you for sharing your journey and allowing us to keep you before the throne of grace.
NKL
Praying for all
ReplyDeleteerika
I cried through out the whole video like many I'm sure! Praying for the Lord's blessings and tender mercies on each of you, and I'm praying special blessings, and mercies on dear Seth.
ReplyDeleteYes, a tear-jerker but filled with praise too!
ReplyDeleteThank-you SO much for sharing the Beautiful video...I cried too, in thankfulness and Joy, just to know how far the babies have come,,,and the witness of Strength that you two have shown...I cried to because of the connection I have come to have with each baby,,It has been such a Blessing to me to be able to Pray for the Babies and Isaac and the two of you....The second song on the video I have thought of your Family each time I would hear it...and when it came to Seth, I "lost it"...I saw the Love and tenderness of God upon each person and Baby....AND God IS STILL WORKING. for each Baby's needs, and help along the way with Isaac and both of you....It was Wonderful for you to be able to nurse Marcie, Will and David all in one day...It's such a special time between Mother and Baby but that X 3 is amazing and extra special!!! what Joy!!! and we are Praying for the Day when you can nurse Grace AND Seth!!! My Heart and Prayers go out several times a Day For all Especially "little Fighter" Seth..I was ill for about a week last week and in a lot of pain, all I could say was , I offer this Pain up for Seth... also last Friday I received a Call from Franciscan University of Steubenville in Ohio, where my daughter wants to go to College next year, and they asked If I had any Prayer request and right away I told them about 5 babies that were born at 27+ weeks in Texas,, they had not heard but said the intention will be Prayed for at the University . My our Gracious God Bless Each One of you........From Dayton. Ohio
ReplyDeleteOh my, what a beautiful video (both of them), and what a testimony to the power and strength of our Lord!! Love you guys, and praying every day. Richard and Phyllis
ReplyDeleteI echo all the above. The video was awesome. It is true to work to keep names on the pictures. The more I scrapbook, the more I see this the biggest need along with dates. May God continue to bless your family. Judith
ReplyDeleteI came across this blog quite by accident, just before you gave birth to these amazing babies. I pray for them regularly and KNOW that Gods hand is wrapped around each of these children daily. Thank you for blessing your children with your faithfulness to Him. To God be the glory!!
ReplyDeleteI too shed tears thru this entire beautiful video that you put together so creatively. I have saved all your blogs. The pictures are so precious to me, as are each one in your very special family. You are bringing glory to God for sure, with how you have handled each crisis with the quints. Our hearts have been so touched by your commitment to the Lord and his healing power. Our prayers continue to be with you all, but we do concentrate on little dear Seth because of his lung problems. May the Lord be with you to give you strength and energy as you care for your dear family. Our prayers will continue too. Love, Raemajean and Bill
ReplyDeleteWould love to know the names of the songs played turning this precious video. May God wrap all of you in His surrounding love.
ReplyDeleteYes, I forgot to include them. They are "He's Always Been Faithful" by Sara Groves and "Blessings" by Laura Story. :) Thank you!
DeleteThat was precious! I'm going to call my mom (Shirley Burtch) to make sure she sees this. Praying for your family as you adjust to having one baby home, running around to the couple of hospitals and especially for Seth. Phyllis Burtch Porter
ReplyDeleteWhat a beautiful video and testimony! I don't know your family personally but am a friend of Jennifer Waller's from First Baptist Dallas! Please know there are many far and wide (including myself) praying for your precious family! ~ Janie Peterson
ReplyDeleteWe have been praying from the beginng of this journey with you. How blessed we were to see the road in real life. Oh, how we wished we could come and be there to help in a physical presences. We know God has a wonderful plan for all your lives.
ReplyDeleteLove to each, John and Debbie (formerly Maui)
Beautiful video...may our heavenly Father continue to bless and heal these sweet babies for it is in the wonderful name of Jesus our Savior that we ask, Amen
ReplyDelete