But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Thursday, October 11, 2012

Seth struggling more today

Hi faithful friends, family, prayer warriors and caring "strangers,"

Seth has had a rough night and morning. He keeps de-satting (referring to his blood oxygen saturation) way down into the 50s, 40s and even 30 percent range, whereas before he was holding steady in the high 90s. He's down to only 5 ppm on the nitric, having started at 20 ppm before the weaning began, and it was around 6 ppm that he started struggling. The nurse practitioner and neonatologist have assessed him and are checking into getting another echocardiogram possibly to check on his heart. They're also going to consult with pulmonology to see if it would be wise to start another vasodilator drug that can "take over" for the nitric and allow them to get him off. They don't know why he's having these deep de-sats, beyond the fact that it may be the surfactant gene mutation, of course. (Those with experience with ABCA3, please feel free to comment!)

He's also more agitated today; the nurses have orders to give him more meds as needed to help with that. Thank you so much for praying.


Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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