But from everlasting to everlasting the LORD's love is with those who fear him and his righteousness with their children's children . . . Psalm 103:17

Wednesday, June 19, 2013

Seth: a step back

The pulmonologist warned us that weather changes throw some of his kids for a loop; apparently Seth is one of those kids! Three nights ago I hooked him up to the monitor at bedtime and saw he was hovering around 89-90% blood oxygen saturation, well below his usual 95-100%. The other monitor read the same, and the inhaler didn't help. I hooked him up to oxygen at the lowest flow rate per minute, but within a few minutes Gavin had to get up and turn up the the machine to deliver 1/8th of a liter of oxygen per minute. The following morning (Monday), Seth's saturations were down in the low- to mid-80%'s. The weather had turned overnight from hot and dry to very wet and blustery. The sun came out again in the afternoon, but another thunderstorm came through early yesterday morning. Seth was still not satting great last night (91%), so he remained on oxygen. The doctor's office says to keep trying to wean him and give him the rescue inhaler and that this is very normal. If he isn't able to back down off of the oxygen at all by tomorrow afternoon I am supposed to call them for a chest x-ray to be sure he isn't fighting some sort of illness. He sure isn't acting like he's fighting anything. He's feisty and sweet and fun, playing like crazy! His eating isn't as great as it was, but he did eat a decent portion of his arrowroot cookie on his own yesterday. :)

On a MUCH happier note, Seth technically "failed" to re-qualify for physical therapy because he's come so far and is "only" a month behind where he should be, hooray! He's functioning on a six-month-old level with sitting skills and floor skills. In order to be at the 7-month level (for his adjusted age) he's got to learn to roll back to front (which he has an aversion to because of the g-button) and get up in crawling position on his own. So that's what we're working on, and I'm thankful Lynée is here every day to focus on helping him!

Thanks for continuing to pray for Seth and for all the other babies, who are thriving, praise God! We are unfathomably blessed.

Love and gratitude,
Seth in the jumper with Aunt Pam babysitting. David is sitting in front of Pam. Marcie is trying to climb onto a toy.
Marcie in her Daddy's hand under the tree outside

Taken this morning: David, Will, Marcie, Gracie, Seth

Notice Will is looking at the fan as per normal. :)

David, Will (looking at his daddy this time), and Marcie, looking at her Cheerios. :)

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

Gavin, Carrie, Isaac, Will, David, Marcie, Seth, & Grace Jones

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