Gastroenterology still has him on the schedule for receiving a g-tube on Thursday, so we are hoping and praying that Anesthesia will agree to sedate him (breathing issues being the concern, although Neonatology doesn't think there's any problem). The anesthesiologist doing the procedure won't be around until Wednesday or Thursday. We will let you know as soon as we know if he/she agrees with Gastroenterology and Neonatology.
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| Loves his mobile! He is stripped down because his gag reflex kicked in when I tried to give him his bottle. |
what a chunky monkey! so cute, hope the surgery goes well.
ReplyDeletePraying that all goes well.
ReplyDeleteNKL
He looks like he's ready for home. Here's praying everything goes absolutely perfectly.
ReplyDeleteI wanted to give you a heads up on kids with g-tubes, mickey's etc. The pumps can drive you nuts with all of there beeping as much as you want the child home. I have a daughter who is now on one for the second round in her life. I feel like I have an infant again for the number of times I'm up with her. For you being up at night with siblings it might be easier to manage. Stay close with you durable medical company they can be your best friend helping to trouble shoot. I was surprised that you are getting a mickey right away, in my area that is extremly rare. Ask your nicu for a no sting barrier to use around the mickey sight this helps prevent skin breaking down. Also a number of sights sell mickey buttons in fun patterns to absorb all the gunk that comes out of that little area, I would highly recommend these. A few I would recommend are: sewamazingcreations.com and superbellies.com, they both have face book pages check them out. Also, a website that is very helpful to familes of tube fed children while they are tube fed and then eventually in the weaning process is tubefeedingessentials.com. It is one of the only web site designated to people who are tube fed or in various stages of tube fed. Shuold you have questions, I would be happy to answer. I'm pray your little moneky is able to come home soon. You have quite the troop at home already. Rachael
ReplyDeleteThanks so much, Rachael! I will definitely go to these sites. Wouldn't we only feed him at like midnight and six, unless he wakes up hungry, running the pump over half-an-hour max (after bottling)? We also have night volunteers, thank God, who would share the load. The babies are starting to go six hours at a time. Except of course every third or fourth night - or the last two nights, arg! He's actually been taking nearly full feedings by mouth, so Lord willing this pump will be fairly short-term! Carrie
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