Carrie was able to spend about 4 hours with Seth today and a good bit of time with the others as well. While Marcie was eating like a champ yesterday, she wasn't doing so hot today. It's been quite a waiting game to see when the next one will come home-- David's been here for two weeks now and is doing wonderfully.
Seth is continuing to deteriorate-- he's needing increased support almost daily on the breathing rate and pressure. Knowing how well babies do when at home and out of the hospital environment, we are asking the doctors about the possibility of Seth getting a tracheostomy that might allow him to come home soon with the hope that continuous exposure to us and family (which he loves, judging by his high oxygen saturations) will allow him to heal. Please pray with us and for the doctors about what is the wisest direction to move for our little Seth.
We'll post some more pictures tomorrow. Enjoy an extra hour of sleep! I always miss the extra sunlight in the evening, though.
Gavin
I have been and will continue to pray that Seth, especially, and all the babies come home SOON!!! The constant love of the family is so powerful and healing. As the Holy Spirit is in all of you, so then will the babies be always blanketed with His love.
ReplyDeleteThank-you Gavin for the update,,I pray that Our Heavenly Father, will continue to give You and Carrie the strength and perseverance as you walk this journey with him, by your side...I Pray that you are filled with his Peace and Joy as you visit each of your Miracle Babies,, Knowing that prayers are with you from around the world day and night,,,I pray that God's healing is working in each of the Babies lives every minute,so God will for their lives will unfold,, Lord we come before you also for the Care Team each Baby has, and give them your wisdom and guidance,, Lord your will be done in the decision about Seth,,For only You know what is best for him...we praise you Father for how far the Babies have come,,the weight they have all gained,, and how far they have come with their breathing !!! their feedings...We Praise and thank-you for the healing you will give the Babies this week!!!! I'm not sure if you know the Christian band MercyMe,,, When I was going through a very hard time with my Handicapped son two years ago,,I listened to the band constantly because I was really under a lot of pressure, All I could do is just worshiped God through music ...I'm not sure if it's music you like but the words and music can get you into the awesomeness of Our God !!! You tube Mercyme " Word of God Speak" Is one. another "Hold Fast"... "You Rein " that's just a few...For now May all Sleep in the Peace of Christ,, and Give the Babies an extra me and all that are praying for them...From Dayton, ohio
ReplyDeleteI pray for all of you every day...but today extra prayers for little Seth and Marcie.
ReplyDeletecontinued prayers for little Seth and all the babies, and for Mom and Dad.
ReplyDeleteI remember it took our preemie forever to figure out eating. That's what kept us there past my due date. I know how frustrating it can be when you know that's all that's holding you up from bringing home Marcie. Part of the frustration is knowing that there is absolutely nothing you can do, but be patient and wait. Keep hanging in there. Before you know it they'll all be home and the NICU will be a thing of the past. :) Keep leaning on Jesus and He'll continue to give you the strength for each day.
ReplyDeleteSarah
Merciful Lord, we thank You for each day of these young lives and pray that You will give them many, many years so that they can share their journey of miracles with the world. Please help little Seth to breathe on his own and give those caring for him and his siblings the wisdom to make the best decisions for their continued well-being. And, please be with Will, Marcie and Gracie that they, too, might make the improvements needed so that they can go home and feel the constant love of family. We pray that Gavin and Carrie can find peace in the chaos and be ever mindful of Your love for them. You are the Creator and Giver of life, Lord, and we praise You and thank You for all of these blessings and for Your continued mercy and grace. Amen. NKL
ReplyDeletethank you so much for the update. As always, er are praying for all the babies, especially sweet little Seth. I will especially pray for guidance and wisdom for you both and the medical team in making decisions for Seth. It seems that every time he takes a giant leap forward he takes a few steps back and this is normal for life in the NICU. It is frustrating and difficult to bear. Like with Marcie, these tiny little people typically take three steps forward and two back, but eventually they will all come home and the NICU will be only a memory. I think it gets even harder when they reach the regular size of a newborn and looks o healthy and you just wantt o bring them home and love them. God Bless you all.
ReplyDeleteDitto with what has been said. I know that with all the prayers, you will know the right leading for either bringing Seth home or waiting. I know from past experience how tired I have been to do hospital trips and you have 2 hospitals every daY. Relax when you go to and from hospitals and when you can at home.
ReplyDeleteGod loves all of you so much and he is walking with you through this. Judith
Hugs and prayers. For all of you.
ReplyDeletePraying for you all here in Peru.
ReplyDeleteKandie Stilwell
www.stilwellsinperu.blogspot.com
I heard a new song this morning and had to share some of the lyrics that spoke to me. ~Prayers from Nebraska
ReplyDelete"Already There" by Casting Crowns
From where I'm standing
Lord it's so hard for me to see
Where this is going
And where You're leading me
I wish I knew how
All my fears and all my questions
Are gonna play out
In a world I can't control
Oh, oh
When I'm lost in the mystery
To You my future is a memory
Cause You're already there
You're already there
Standing at the end of my life
Waiting on the other side
And You're already there
You're already there
From where You're standing
Lord, You see a grand design
That You imagined
When You breathed me into life
And all the chaos
Comes together in Your hands
Like a masterpiece
Of Your picture perfect plan
This Quintesstential Grandma thanks you for posting these marvelous words! Such an encouragement to see life in terms of God's future grace.
DeletePraying for your precious Seth. And all of them.
ReplyDeleteGod bless!!
ERIKA